Tenth in a 13-part series of investigative programmes from the BBC regions.
Baby Nimi [text removed] was born with a life-threatening heart defect and the agonising decision of her parents, Makhan and Gurbax, to deny her the chance of a heart transplant, knowing that she could die without it, is the subject of tonight's programme.
The Birmingham family's eldest daughter Nicky was born with the same genetic heart defect-dilated cardiomyopathy - and was given a heart transplant when she was three. Subsequently she suffered a stroke and lost the use of her eyes, limbs and speech.
Makhan and Gurbax have had two healthy girls in between Nicky and Nimi, but have lost faith in heart transplants, believing that they prolong suffering and are not the answer to Nimi's illness.
Without the operation, Nimi is not expected to live beyond the age of four, but the couple have carefully considered their decision and have talked the situation through with the doctors involved. Tonight they talk to reporter Nick Booth about the problems they face and how difficult life is for their family.
(First shown in BBC Midlands)