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BBC OS Conversations: Living with multiple sclerosis

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Living with multiple sclerosis

14/04/2023 GMT

BBC World Service - BBC OS Conversations, Living with multiple sclerosis

As new research promises hope, people with MS share their experiences

As new research promises hope, people with MS share their experiences.

A ground-breaking new medical trial has begun in the UK aimed at slowing the progress of multiple sclerosis. MS is a lifelong progressive condition affecting the nervous system with no known cure. It causes a wide range of symptoms – from loss of vision to mobility problems. For many it can lead to severe disability. 

The Octopus trial is looking into whether existing drugs can be repurposed to help slow the progression of the condition. Alykhan, who was diagnosed with MS when he was still at school, is taking part in the study. He joins us in conversation with Professor Jeremy Chataway, from the National Hospital for Neurology and Neurosurgery in London, who is leading the trial.

We bring together Vicky in the UK and Amanda in the United States who are both living with MS. They share their experiences with host James Reynolds of good days, bad days and how they try to stay positive. 

We are also joined by Simone, Jon and Brandon, who have cared for their partners who have MS. “You know and love this person,” Simone tells us. “But you’re almost grieving for the person they were, the life you had.”

This programme is a co-production between BBC OS and Boffin Media.

(Photo: Amanda and her family on an MS charity walk. Credit: Amanda)

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