Programme Index

Discover 11,128,835 listings and 279,788 playable programmes from the BBC

Inside the Ethics Committee

Series 12

Episode 3: Sharing Genetic Information

Duration: 43 minutes

First broadcast: on BBC Radio 4 FMLatest broadcast: on BBC Radio 4 LW

Available for over a year

Andrew is just 33 when he develops bowel cancer. Genetic tests reveal he has a genetic condition called Lynch Syndrome.

Lynch Syndrome has previously been diagnosed in a relative, but Andrew was never told that put him at risk. If he'd known, his cancer might have been spotted sooner and treated.

In a separate case, Lucy discovers that her father has Huntington's disease. She wonders whether to get tested for the gene herself. Unlike Lynch Syndrome the disease can't be treated or prevented so she is unsure whether there is any benefit to knowing.

Lucy's also concerned about what this means for her young son. If she had known about Huntington's sooner she could have chosen not to pass on the gene. But now it's too late - could he carry the Huntington's gene too? How and when should she break that news to him?

Joan Bakewell and her panel of experts discuss the ethics of sharing genetic information. Do doctors have a duty of care only to their patient or also to the wider family? How do they balance their patient's right to privacy with the wider family's right to information that could save their lives?

Producer: Lorna Stewart
Photo Credit: Serge Noel / Getty Images. Show less

About this data

This data is drawn from the data stream that informs BBC's iPlayer and Sounds. The information shows what was scheduled to be broadcast, meaning it was/is subject to change and may not be accurate. More